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  #16   Spotlight this post!  
Unread 27-08-2004, 18:14
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Re: CD Member in Hospital

I thought I'd update the gang here as there have been a few changes in Karen's situation in the last couple of days.

First, I printed out all your replies so she could read them in the hospital. She enjoyed them very much. She wanted me to tell Amanda Morrison that she too smells like a moose. It is a side effect of some of her medications. I also inadvertently cut off Eugenia's post. I'll be sure to include it next time!

Yesterday, she was officially "discharged" from the hospital. But really she just moved downstairs and "checked in" to the "nursing home" on the first floor. Patients there are expected to do more to take care of themselves. But she is still plugged into the IV machine and she still gets tired very easily. Just getting up to go to the bathroom is a major effort. She doesn't seem to be in as much pain but the doctors have some suspicion that her illness is more serious than originally believed. We are waiting for some test results to find out for sure what is going on.

We looked into taking our laptop to the hospital so she could join us all again, but before anything can be plugged in there, the hospital engineering department has to approve it. Then she would have to unplug either the bed or the IV machine. It would also tie up the phone line she shares with a roomate. All in all it doesn't seem to be worth it, so we'll have to get along without her for a while longer. Easier for you than for me.

Thank you for your prayers, something does seem to be happening, though not nearly as fast as we would like.

ChrisH
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Unread 27-08-2004, 19:01
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Re: CD Member in Hospital

Awww. I hope she feels better. *sends cookies* Genia's homemade cookies are good. Maybe I'll bring them to a competition and pass them on thru you or something...fun times. Prayers go out to her.
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Unread 27-08-2004, 22:53
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Re: CD Member in Hospital

Thanks for the update, Chris. And I am praying for Karen. Just let her know we love her and can't wait until she's back on here again. Stay strong for both of you. =)
Always,
Dori
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Unread 30-08-2004, 18:31
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Re: CD Member in Hospital

News Flash!

I wish it was that Karen is going home from the hospital, but that probably won't be for a while yet. But even though she can't read CD regularly while she is there, she can get your e-mails. One of our team members discovered the hospital has a system to send e-mails to patients.

Just click on this link:
http://www.torrancememorial.org/tmmcreg.htm

Put Karen Husmann in the appropriate fields, add your e-mail address and type away. I'm sure she would love to hear from you all. Just remember she can't reply except through me. So don't be offended if you don't hear back.

BTW while I'm sure she would love some of Genia's cookies, she wouldn't be allowed to eat them. Right now she is on a liquids only diet. Fortunately the kitchen there is pretty good so at least the stuff is edible (or so she tells me). But she does miss chewing. Maybe when she comes home ...

Thanks for your prayers,

ChrisH
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Unread 31-08-2004, 04:09
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Re: CD Member in Hospital

my prayers and thoughts go out to Karen and her family. hope she gets better soon

~Laura
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Unread 02-09-2004, 11:29
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Re: CD Member in Hospital

Another Update

First of all thank you all for the e-mails. On Monday she recieved several and when I walked in she made some comment about "Now you've done it!" like I'd done a bad thing in posting the e-mail information here. But then Tuesday she complained when she didn't get any e-mails. Yesterday we found out what had happened on Tuesday. Apparently the hospital volunteers run this service. The Tuesday volunteers are a little older and less comfortable with computers, so nobody printed out the e-mails for that day. Yesterday she got quite a stack when they printed out the back e-mails!

Health-wise things are getting better. Yesterday we got some important test results back. They showed that things are not as bad as the doctors thought they might be. Karen has moved to a "soft food" diet, which means she has a little more control over what she gets to eat. Much better than the liquid diet she was on before or eating through a tube. They are also transitioning her to oral medications, presumably she can go home if that works out.

They are still concerned about her weight loss. On Tuesday they found she had lost 5lbs in the previous 5 days. While some people would love to loose at that rate, it just isn't healthy and means something isn't right. It was one of the reasons they moved her to more real food. It is hard to get a lot of calories down on a liquid diet.

Karen's spirits are good and she really has enjoyed getting all the e-mails etc. So keep them coming, especially the jokes.

Things are looking up

ChrisH
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Unread 05-09-2004, 11:50
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Re: CD Member in Hospital

Yet another update.

On Friday Karen called me at work to tell me that they were giving her the boot on Saturday. While I was rejoicing, she was very upset because she did not feel she was ready to go home. The problems that put her in there in the first place persist. It seems that the insurance company was saying "Now that you're not on an IV you can go home" There were also no reports of further "incidents" that indicated problems. But nobody had told the nurses or Karen that "incidents" needed to be logged, so of course there were no reports.

So after logging things for a mere twelve hours it was decided that she really was much too sick to go home. There has been some slight improvement since then but I expect she will be there until at least Tuesday. She really has been enjoying the e-mails (she has them on her bulletin board) especially those from some prominent CDers (whose confidentiality I will protect). So if you haven't sent one please do or send a second if you are so inclined.
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Unread 05-09-2004, 13:08
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Re: CD Member in Hospital

Thank you so much for the updates, Chris. I hope she feels comfortable later on about coming home. We miss her very much here. I'll still be praying for her. It seems like she's doing decently, and things will improve. Keep your chins up! =)
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Unread 05-09-2004, 13:57
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Re: CD Member in Hospital

Seems like things are getting somewhat better.. I'll still be praying!
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Unread 09-09-2004, 00:58
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Re: CD Member in Hospital

Chris,
Any new updates?

Take Care,
John
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Unread 09-09-2004, 19:17
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Re: CD Member in Hospital

Karen is still in the hospital. Tomorrow (9/10) she will have been in for three weeks. She is back on IV medication because the oral wasn't doing the job and was having undesirable side effects. The side effects still haven't gone away, but we are hoping it is just because it takes time to get the stuff out of her system. She is healthier overall, but the problem area is just as bad as before, if not worse.

The doctors are starting to talk about surgery. Removing the problem part will solve the current issues. But doing so will also cause other issues and has lifelong ramifications. It isn't like they can put it back once it is gone.

Karen seems to be in pretty good spirits and we are learning the hospital ropes. It took us two weeks to figure out that my son and I could go to the cafeteria and get food and then bring it down to Karen's room so we can all eat together. Yesterday her case worker came by with still more paperwork and Karen commented that they really should give patients a folder for all of it. The caseworker said "Didn't you get one when you checked in?" and gave her one. There was a sheet in it all about parking, eating with the patient, and a host of other things that we had to figure out by ourselves. Oh well, what are engineers for but to figure things out?

Each patient in her section of the hospital gets a bulletin board to post things on. Karen's is covered with e-mails from CD people and church people. I'm not sure which group is "winning" at the moment. I'd make it a contest but I'm not sure the desk people would be able to cope with the flood you guys and gals could generate if you really got going. I'm not sure how helpful it would be either. One or two e-mails a day is enough to let her know she has not been forgotten, which is what she needs right now.

Thanks for asking

ChrisH
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Unread 10-09-2004, 15:21
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Unhappy Re: CD Member in Hospital

I hope she has a quick recovery. Best wishes from team 433 Firebirds.
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Unread 15-09-2004, 02:16
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KarenH Speaks !!!!!

Here is a very long letter to the CD community that Karen asked me to post. I put it all in, typos, grammar errors, and all. I have the hand written rough draft to prove it. Obviously she has too much time sitting around the hospital or this would have been much shorter

Begin Letter____________________________________

September 14, 2004

To all my friends on the Chief Delphi forum, thank you for your kind expressions of well wishing, your prayers, and yes even the attempt at truly bad jokes. I think the punch bowl cracked.

My dear husband, ChrisH, wanted to keep you posted on my status. But since most of us don’t know each other well, he posted no details. Now, if you want to know the disgusting, discouraging, gory details, I’m willing to tell you, with a couple of cautions.

1. If you have a weak stomach, you might want to skip this post

2. Please, please, PLEEZE do not e-mail me with the latest pill, diet, Aunt Millie’s ever-cure, snake oil, etc. At best they will amuse me, at worst they will upset me, and you don’t want to upset a sick woman, do you? I have enough local friends and family to help me get confused. Good thing my team of doctors and nurses is coming to a consensus with me on the next treatment plan.

My Disease

Over ten years ago I developed a disease called ulcerative colitis; an Inflammatory Bowel Disease (IBD). Crohn’s is the other well-known IBD. You’ve probably heard of one or the other of them. They have some treatments in common, but many distinct features from each other. If you want reliable medical information on IBD, contact the Crohn’s and Colitis Foundation of America (www.ccfa.org).

The main symptom of ulcerative colitis is bloody diarrhea, often accompanied by painful cramping. It definitely puts a crimp in my lifestyle! I liken UC to having a “wild card”. I never know when it will be quiet or “flare up”. Medical researchers have some clues about the disease, but the cause is not clearly understood. Therefore, a cure is hard to establish. Current research focuses on the idea that UC is an autoimmune response. The lining of the colon (large intestine) thinks there is an enemy to attack and sets up a raging inflammation with bleeding and ulcers, to ward off whatever pathogen it imagines is invading.

Initial treatment consists of anti-inflammatory medications (sort of like aspirin), and possibly steroids to stop the inflammatory response. After about a year and a half of experimenting with various drugs, I went on a different medication which suddenly cleared up my symptoms.

Since 1995, I’ve been able to live a normal life, except for taking huge yellow pills twice a day. I could control an occasional mild flare up by temporarily increasing my medication.

Last winter I couldn’t get an appointment with my GI doctor because he was moving his office. Not being pushy enough, I didn’t do the necessary arm twisting, ran low on my medication … and had a flare up that lasted all winter … i.e. build season.

Troubling and Amusing Details

With ulcerative colitis patients, after the disease has run ten years and more, the risk of colon cancer increases significantly over that of the general population. Most of you won’t need your first colonoscopy until you’re 50, and then there is an excellent chance that any cancer will be nipped in the bud. With UC, however, it’s a whole different ball game. The ulcers characteristic of the disease make it harder to tell what’s a polyp and what’s ulcerated tissue. UGH.

Anyway, it’s Build season, my colitis is flaring, doctor can’t wait to peek inside my angry gut. When can a FIRST family schedule the colonoscopy? Wednesday, February 25, 2004, the day after ship date, of course! Give my sleep deprived engineer something else to think about besides gears, lifts, and weight issues. He would take leave from work, drive me to and from my appointment, and maybe catch some Z’s while I’m undergoing the procedure.

Does anybody remember what happened to ship date last winter? FIRST outsourced the packing of the parts kits, disaster ensued … the ship date pushed back to Thursday, Feb 26. “Hey, Chris, want me to reschedule my colonoscopy?” “No, better just do it. Never mind the ship date.”

Guaranteed worst part of colonoscopy: the prep ahead of time. The scope itself was fine. Demerol is a wonderful sedative. I felt no pain and got to lie on my side in a darkened room watching a movie. The movie was of my own gut, in living and sometimes gory color. It was Fantastic Voyage, but without Raquel Welch. Who would want Hollywood actors running around inside, anyway? Afterwards, the doctor gave me a couple snapshots of my poor ulcerated gut. Results showed my colitis remained confined to the lower end of the gut, a mild case. Afterwards, I went home, took some more medications, and my flare-up came under control while Beach’Bots competed at the Arizona Regional. From then through Nationals and springtime, my gut behaved itself. I enjoyed Atlanta, including meeting some of you at the CD webhug.

The Downturn

If life is a deck of cards, shuffled by unseen hands, one never knows when the wild card will turn up – the Queen of Spades, it seems. Don’t get me wrong – I believe God is in control of EVERYTHING, but I’m looking through a one way mirror trying to see in the dark.

This time I jumped right on the flare-up by increasing my big yellow pills. I made a doctor appointment, and he put me on Prednisone, which I was eager to take. Prednisone is a steroid for controlling inflammation. It’s prescribed by many doctors as an effective remedy for a wide range of ailments. It also has powerful side effects: I was hoping for my favorite side effect – a burst of energy, so I could catch up on a lot of half-finished projects.

Instead, I lost energy, I lost sleep, I lost my appetite, I felt too drugged-out to drive safely. Moreover, my gut raged unchecked. At my doctor’s urging I checked into the hospital Friday, August 20.

In the Hospital

My initial treatment was to receive an I.V. steroid. I was also given morphine, both for controlling pain and to calm down my runaway gut. Also I was given IV fluids, and nothing by mouth for a couple of days to rest my gut. (Compare with putting a broken bone in a cast to immobilize it.) They also put me on antibiotics. Eventually my blood counts started coming back in line, I was put on a clear liquid diet for awhile, then on a full liquid diet. Now I’m on a “soft diet” and get to order my own food. They also moved me downstairs from Acute Care to TCU (Transitory Care Unit, - like a nursing home, it’s supposed to prepare patients for leaving the hospital?!) I could write a book about my adventures in the TCU!

Well, I’m still on the IV steroid, but my symptoms aren’t improving. Next step is to put me on Cyclosporine, a powerful immunosuppressant used, among other things, for cancer treatment, and preventing organ transplant rejection. They’ll have to monitor me much more closely for scary side effects sometimes caused by cyclosporine. Doctors, even the surgeon are in consensus – but no one is hurrying. They’re optimistic it will halt my symptoms. If it doesn’t, the surgeon will simply remove my colon and leave me with an ileostomy and a bag.

One step at a time!

Cyclosporine treatment means two more weeks in the hospital; I’ve already been here 3 ½ weeks. I’m in no hurry; life goes on without me.

I wish I could reply to each of you personally!

KarenH
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Unread 16-09-2004, 10:28
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Re: KarenH Speaks !!!!!

For those of you who have been sending occasional e-mails. KarenH is scheduled to change hospitals today. She is supposed to move from Torrance Memorial to Cedar-Sinai. In any case the old address for e-mails will shortly stop working. I'm not sure if Cedar-Sinai has a similar system or not. I didn't see one on their website, but then it is so big that I probably just haven't found it yet. I'll post the new address if and when I find it. Or you could just send them via me!

This will be somewhat tramatic for Karen. Torrance is where we grew up and is surrounded by friends and family. She is worried that she will be forgotten and that nobody will come to visit. Cedar-Sinai is not all that far away, but Beverly Hills is not eactly our usual stomping grounds either. But they are also one of the best hospitals around for IBD. So all in all I think it is a good thing.

We also had some other good news last night. A friend came to visit Karen in the hospital. We knew that she works for our health insurance company, but we didn't know exactly what she does there. We were talking about Karen's upcoming ambulance ride and wondering whether it was covered and how much it would be if not etc. When this friend pops up with "Inter-hospital transfer? of course it's covered. If you get ANY bills from either hospital send them to me!" It turns out that she runs the department that pays the hospital bills ... Who needs lawyers when you have friends in the right places!
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Unread 16-09-2004, 10:35
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Re: CD Member in Hospital

Chris,

Thanks for keeping us updated - I hope the hospital move goes smoothly for both you and Karen.

Quote:
Originally Posted by ChrisH
"Inter-hospital transfer? of course it's covered. If you get ANY bills from either hospital send them to me!" It turns out that she runs the department that pays the hospital bills ... Who needs lawyers when you have friends in the right places!
Awesome.
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